A Birkdale family had their world turned upside down when their daughter Kora was diagnosed with Rett Syndrome two years ago.
Rett Syndrome is a genetic disorder that affects the way the brain develops, with loss of mobility or function in the hands and mouth.
Major research and trials are currently under way in the US with the hope of finding a cure.
However, further funding is vital.
Cure for Kora was created by her family to raise awareness and funds for the Rett Syndrome Association Australia, which works closely with their American counterparts.
Craft Brew House at Birkdale will host their first ticket-only fundraiser for the cause on June 17.
The event will kick off at 4pm to help the local family and others around the world. Craft Brew House are also selling fundraiser cookies at the bar for $5 each.
Craft Brew House owners Tracy and Martin Robson said the goal was to raise $20,000 to help bring trials to Australia.
“Kora and her family are regular customers, and you can often see the girls dancing to the live music on Sunday afternoons,” Mr Robson said.
Mrs Robson said to expect special appearances from celebrities across the day, including AFL Masters Queensland Association secretary Sam French who will be the guest MC.
“The event will see a series of auctions and raffles using items donated by local businesses and suppliers,” she said.
Rett Syndrome Society president Claude Buda will be flying in from Sydney to attend and speak at the event.
Mr Buda’s daughter has also been diagnosed with Rett Syndrome and will be accompanying her father, along with the rest of her family.
If you wish to donate or want to get involved in the raffles and silent auction, visit craftbrewhouse.com.au or pop into Craft Brew House to grab a cookie, raffle ticket or a drink.
